Episode 16

When Priyanka Saha attended her final pregnancy scan, she was told that her baby wouldn’t live very long. Lily was diagnosed with Miller-Dieker Syndrome – a rare disorder that causes the outer part of a child’s brain (the cerebral cortex) to be smooth causing severe developmental issues. Despite the heart-wrenching prognosis and knowing that Lily only had a limited time on earth, Priyanka and her husband made it their mission to make every day special.


Priyanka’s Instagram

The Lily Calvert Foundation

Very Special Kids

Very Special Kids’ Instagram



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